REPOST: 2/28 Rare Disease Day Show Your Colors for UMBC Swag
Rare is many, Rare is strong, Rare is proud!
Accessibility and Disability Services joins the Office of Sustainability in raising awareness for Rare Disease Day on February 28 - especially because students with serious/long-standing health conditions request academic accommodations through Student Disability Services. Similarly, faculty, staff and student employees with rare diseases may seek work-related accommodation through Accessibility & Disability Services. The Office of Sustainability eloquently points out that sustainability, climate, health (which includes mental health) and access to health services are connected on an essential level here:
UMBC's Office of Sustainability invites you to participate in our annual Rare Disease Day Challenge! This Tuesday Feb. 28th, we ask you to share your support, by showing your colors, on social media and using the #UMBCRare. We'll randomly select some lucky folks throughout the day to win some UMBC sustainability swag!
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.
Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year.
Though Rare Disease Day is patient-led, everyone, including individuals, families, caregivers, healthcare professionals, researchers, clinicians, policy makers, industry representatives and the general public, can participate in raising awareness and taking action today for this vulnerable population who require immediate and urgent attention.
By Sharing your colors via social media, events, illuminating buildings, monuments and homes, by sharing experiences online and with friends, by calling on policy makers and shining the light on people living with a rare disease, collectively we aim to change and improve lives of the 300 million people worldwide.
What does this have to do with Sustainability?
The overarching goal of the campaign is to recognize that People Living With Rare Disease (PLWRD) are an overlooked population requiring immediate and urgent attention, and global and national policies that address their needs and contribute to achieving the UN 2030 Agenda, the Sustainable Development Goals and their pledge to ‘leave no one behind’.
The 300 million PLWRD around the world and their families face common challenges in all aspects of their daily lives. As a population with increasing vulnerabilities, they are disproportionally affected by stigma, discrimination and social marginalization, within their social environment and in society at large. The paucity of knowledge and expertise on rare diseases and the lack of awareness of the challenges faced by PLWRD mean that they are psychologically, socially, culturally and economically vulnerable.
There are a number of synergies between the rare disease community’s needs and goals, and those of the UN 2030 Agenda and its
Sustainable Development Goals , mainly the following ones:
- Challenges affect the whole family and cause overall increased isolation and impoverishment (SDG 1);
- PLWRD lack access to appropriate diagnosis and lifelong care and social support (SDG 3);
- PLWRD face challenges in accessing education at all stages of their life due to inaccessibility of facilities and non-adapted teaching methods (SDG 4);
- Women living with a rare disease face more difficulties in accessing care and, when a member of the family lives with a rare disease, the primary unpaid care role is most often assumed by women (SDG 5);
- PLWRD and their families face challenges in access, retention and return to employment (SDG 8);
- The disproportionate level of vulnerabilities means PLWRD face stigma, discrimination and lack of opportunities for inclusion in society (SDG 10).
Photo of two young zebras peeking above the back of a third zebra, all with different black and white stripe patterns. Credit Hans Veth via unsplash.com
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Accessibility and Disability Services joins the Office of Sustainability in raising awareness for Rare Disease Day on February 28 - especially because students with serious/long-standing health...
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Accessibility & Disability Srvces + Office of Sustainability
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Tue, 28 Feb 2023 11:21:17 -0500
Tue, 28 Feb 2023 11:28:09 -0500
New Equipment @ the DML
New to our collection!
- Canon Rebel T8i cameras
- Genaray portable lights
- Boya lavalier mics (compatible with DSLRs & camcorders)
- Brand new DVD drives
- Desktop stands for lights and smartphone adapters (which we also circulate)
All you need is your UMBC card to check out equipment for seven days. Visit us in the Digital Media Lab, room 216H next to the Honors College.
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New to our collection! Canon Rebel T8i cameras Genaray portable lights Boya lavalier mics (compatible with DSLRs & camcorders) Brand new DVD drives Desktop stands for lights and...
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Albin O. Kuhn Library & Gallery
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Albin O. Kuhn Library & Gallery
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Tue, 28 Feb 2023 10:11:12 -0500
REPOST: Commuter Student Week
Mark your calendars! Off-Campus Student Services (OCSS) will be hosting Commuter Student Week from March 6 –10. Please join OCSS as we host events every day of next week dedicated to empowering, educating, and most importantly connecting commuter students to all the great resources offered here at UMBC.
This is a week dedicated to the largest student population at UMBC who travel daily to and from campus in order to continue their educational journey. Our theme this year is “The Magic School Bus - Next Stop OCSS.” Please help us spread the word by sharing the attached flier with your students on your myUMBC group, social media accounts and by posting within your departments!
Let’s make sure our commuter students feel appreciated and a part of the UMBC community, especially next week!
On behalf of OCSS
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Mark your calendars! Off-Campus Student Services (OCSS) will be hosting Commuter Student Week from March 6 –10. Please join OCSS as we host events every day of next week dedicated to empowering,...
http://www.ocss.umbc.edu
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The Mosaic: Center for Cultural Diversity
https://beta.my.umbc.edu/groups/themosaic
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Initiatives for Identity, Inclusion & Belonging (i3b)
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Fri, 24 Feb 2023 12:50:32 -0500
Graduate Christian Fellowship Game Night #2
Board and Card Games with Friends
Grad students! Join us for a blast playing board and card games with friends on Friday, March 3rd, from 7:30 PM - 10:00 PM at The Gathering Space, The Center of Well-Being!
Feel free to bring your own game to play! There will be free drinks and snacks and feel free to bring your favorite snacks to share!
We will also have random prizes for our attendees. Don't miss out on this opportunity to have a wonderful time and meet new people! We hope to see you there!
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Grad students! Join us for a blast playing board and card games with friends on Friday, March 3rd, from 7:30 PM - 10:00 PM at The Gathering Space, The Center of Well-Being! Feel free to bring...
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UMBC Graduate Student Association
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Thu, 23 Feb 2023 13:12:41 -0500
GEARS Ideathon and PowerPoint Roullette
Join Now for these fun events!
GEARS, UMBC ’s Graduate Experience, Achievements, and Research Symposium invites graduate students to participate in some fun and exciting events this semester!
Register Here
During Ideathon new or existing problems can be better tackled by using their new idea. Participants will present their ideas to the jury and fellow graduate students in UMBC.
This event will highlight your creative skills and the uniqueness of your idea, which can be social, environmental, IT technology, medical field related, etc. These ideas can be real or hypothetical. You create a three-minute presentation showcasing your idea and how unique it is. All the participants are eligible for UMBC prizes.
PowerPoint Roulette is a fun event that tests your ability to think on-the-spot and speak publicly! During this competition, you will present a PowerPoint on a random topic you are not prepared for, with slides you have never seen.
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GEARS, UMBC ’s Graduate Experience, Achievements, and Research Symposium invites graduate students to participate in some fun and exciting events this semester! Register Here...
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Thu, 23 Feb 2023 11:34:25 -0500
REPOST: Taxes & Tacos
Join OCSS and The Women's Center!
This is a repost of an event organized by Off-Campus Student Services.
Join OCSS and the Women's Center for Taxes & Tacos. There will be a rep from Financial Smarts to share about on-campus resources available to students and to answer any questions students may have.
Wednesday February 22nd, from 7:30pm-9:00pm at the Women's Center Lounge, located on the bottom floor of Commons, room 004, next to Dunkin Donuts and the Yum Shoppe
Tacos will be provided!
Please contact Megan Lamptey from OCSS at meganl3 @ umbc.edu with any questions, concerns or accessibility or accommodation requests.
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This is a repost of an event organized by Off-Campus Student Services. Join OCSS and the Women's Center for Taxes & Tacos. There will be a rep from Financial Smarts to share about...
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Women's, Gender, & Equity Center
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OCSS, the Women's Center
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Wed, 22 Feb 2023 15:23:34 -0500
Fri, 11 Aug 2023 10:45:57 -0400
Run for GSA Executive Council!
Be a graduate student leader next year!
The Graduate Student Association is looking for candidates to run for important Executive Council Positions including:
-President
-Vice President
-Senate Speaker (must be an elected Senator to run)
-Treasurer
-Historian
-Chair of the Graduate Assistant Advisory Committee (GAAC)
-Chair of the Graduate Experiences, Achievements and Research Symposium (GEARS)
-Chair of the Legislative Concerns Committee
- Chair of the Equity of Funds Committee
- Chair of the Graduate Student Success Committee
Please nominate qualified (must have had 12 graduate student credits and completed one academic year) candidates using
this form.
Registration will close Friday, March 24th, 2023
The election will be held on April 6th, 2023 during the Senate Meeting.
Full descriptions and expectations of the positions can be found
here.
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The Graduate Student Association is looking for candidates to run for important Executive Council Positions including: -President -Vice President -Senate Speaker (must be an elected Senator...
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UMBC Graduate Student Association
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Wed, 22 Feb 2023 10:33:44 -0500
Wed, 22 Feb 2023 12:13:23 -0500
Calling all graduate student leaders!
The Graduate Student Association is looking for Senators
Calling all graduate student leaders!
The Graduate Student Association is looking for Senators to represent all graduate students in the GSA Senate.
Being a Senator is an important and prestigious position in university shared governance. Senators are the representatives that dictate the operation of the GSA as well as give a powerful voice to graduate students and graduate student concerns with administration, legislators and the university.
Registration will close on Friday, March 24, 2023
Positions will be voted upon during our Senate Meeting April 6, 2023
If you are interested in becoming a senator, please apply here!
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Calling all graduate student leaders! The Graduate Student Association is looking for Senators to represent all graduate students in the GSA Senate. Being a Senator is an important and...
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UMBC Graduate Student Association
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Wed, 22 Feb 2023 10:33:26 -0500
Assistive Tech, Accommodation Letters and Survey Choice
Spring SDS Brown Bag Learning Series
Are you a student looking for assistive technology?
Are you a faculty member who received a letter of accommodation and wants to learn more?
Are you a student curious about assistive technology?
This series is open to all students, staff, and faculty interested in learning more about the intersection of accommodations and technology. We will be demonstrating low tech, and other assistive technology, demonstration captioning options and document remediation
All sessions will be held from 12:00 PM to 1:00 PM in Math Psychology 222
Session 1. February 22nd, 12:00-1:00 This session will focus on an introduction to assistive technology available to all students, staff, and faculty
Session 2. March 22nd, 12:00 – 1:00 “I received a letter of accommodation…now what?” This session will take a deep dive into accommodations and their relation to functional limitations
Session 3. April 29th, 12:00 – 1:00 The subject matter for this session will be determined by survey results of what you, the community, would like to learn more about
Session 4 May 17th, 12:00 – 1:00 This session will focus on preparations for accessible course content.
Have questions, need details, or have questions about access or accommodation for these events, email the event organizer via canale@umbc.edu
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Are you a student looking for assistive technology? Are you a faculty member who received a letter of accommodation and wants to learn more? Are you a student curious about assistive technology?...
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Office of Accessibility & Disability Services
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Tue, 21 Feb 2023 17:16:54 -0500
Upcoming Volunteer Opportunities
Want to give back to your community? Retriever Essentials has plenty of opportunities to volunteer in whatever capacity feels right to you:
Free Food Pop-Up Market
Every Thursday (volunteers needed this Thu 2/23)
AOK Library Loading Dock
1:45 to 3:30 PM
Pack Meals @ True Grits
Mondays through Thursdays (volunteers needed next week)
Meet at True Grits
1:50 to 3:10 PM
Online Service: REACH
1-2 Fridays per month (starting this Friday 2/24)
9:00 to 10:00 AM
Interest Form (optional; we will add you to the invite if you fill it out)
Prac 096
Volunteer weekly and get credit on your transcript
Thursdays 1:45-3:30 or Fridays 1-3
We hope to see you soon!
- The Retriever Essentials Team
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Want to give back to your community? Retriever Essentials has plenty of opportunities to volunteer in whatever capacity feels right to you: Free Food Pop-Up Market Every Thursday (volunteers...
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Retriever Essentials
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Tue, 21 Feb 2023 14:33:30 -0500